On this date in history—which is to say, last year—I was beginning an almost two month long, post-operative stakeout in the center of my living room. I had a rather sizable orthopedic surgery (the largest one of about seven through the course of my life) that left me immobile in casts from my toes to my hips, feet kept three feet apart by a bar between my knees.
There was nothing I could do except read, watch movies, and write—which, even for someone like me who loves all of those things passionately—soon got old. I couldn’t get up for any reason, had to be taken in and out of my house by paramedics, and the highlight of my mobility came when I was eventually able to wiggle myself over to at least maneuver the bedside commode without assistance. Ah, the simple joys of life.
To say that it was unpleasant is being almost disingenuous. It sucked. Yet, there was humor within—usually revolving around toilet humor and the predictable bawdy jokes that can be made when one cannot close one’s legs. The claustrophobia-and-Valium-driven e-mails I sent out to friends (a select few bore the brunt more than others) are now looked upon as quaint relics of a bygone era, and yet, it really happened.

What I find fascinating, as someone who has been disabled since birth, is how much I take my own mobility for granted. Yes, walking and getting around can be a real drag sometimes—literally. I have more than my fair share of spills and tumbles, but I have always been grateful for them. When I was little, my mom and my physical therapist, who has come to be known as my “second mom” due to her constant involvement in my life, used to push me down on mats so that I would learn to catch myself.
To this day, I’m proud to say that I can fall with the practiced grace of a stuntwoman, and have never broken any bones or otherwise damaged myself in the process. In a sense, my knack for defying gravity is where this blog takes its name. For a lot of people with physical disabilities, gravity is our worst enemy. We can’t flip a switch and float over curbs or stairs, and we can’t fall without hitting the ground at a higher rate than our more ambulatory-inclined counterparts.
The one place I’ve always avoided gravity is in water. In the wake of my operation, I had to re-learn how to walk. This was something that I knew vaguely was coming, but had no idea of how difficult it would be until I actually had to do it. I began my first few weeks of therapy in the water, and it was wonderful. Weeks before I had the strength to stand on land, I was walking backwards, sideways, and even running and jumping in the water: all of which I can’t do on land without making a mess of myself.
When I was younger, my favorite Disney film was “The Little Mermaid,” and when I used to sing in competition, I performed “Part of Your World” many times, replete with seashells (sewn to a flesh-tone shirt) and costume fin. What I think young me understood in a way I appreciate much more now, is that when you’re disabled, freedom means different things to you than it does to those around you.
The quest for independence, of indeed, being part of the mobile world, becomes a hazy fairytale in itself that is sometimes reached and sometimes kept like a carrot on a string to keep you chasing after it. Sometimes we advance and become more mobile, sometimes we backslide. Aging produces similar effects.
Our dependence on gadgetry: be it wheelchairs, crutches, orthotics, canes, glasses, prosthetics, you name it, ensures that many of us develop a deep sense of symbiosis, and are drawn to the fantastic—things more real than real—like the freedom of anti-gravity environments, bionic enhancements, or good old-fashioned escapism, be it through books, writing, films, art, music, or some other means.
Can you blame us? I am fortunate to have never felt ashamed of my disability, and have never felt the need to hide it or to pretend that it doesn’t exist. After all, it isn’t as though I can avoid or change it, no matter how much the idea of abandoning my fins for a shapely pair of gams sometimes appealed to me when I was young. I find such things obnoxiously saccharine now, and offering too much shame for the body being what it is, but what can one do? To say that regardless of circumstance or liberal-mindedness we don’t still have days of feeling ugly or ungainly – no matter who we are – is ridiculous.
Looking back at the past year, I see that I have a long way to go in truly appreciating the physical abilities I have. It’s not possible now for me to remember what it was like when I was a child and my mom and therapists invented splints to keep my hands open (so that I could be typing this now). I have no memory of all the machines that once kept me alive and prompted a small child at a basketball game to ask my mother, regarding my infant self, if I was a real baby or a robot/remote-controlled/other intriguing mechanistic possibility.
There is a deep sense of humbled pride that comes with seeing where I am today, able to stand and walk and speak and leave my house and travel as I wish. If you would have asked the doctors when I was born whether these things would ever be possible, they would have – and did – find such notions utterly unimaginable. One doctor told my mother to take me home and love me “while she had me.” Another said if I ever sat on my own, that would be the extent of my abilities.
To say that I’m lucky is at once true and not remotely accurate. I am where I am because of hard work: just as much that of dedicated parenting, therapists, and doctors as my own blood, sweat, and tears. However, I am also incredibly fortunate to have the right combination of those things in my life. And as I trip over a shoe this morning and fall face-first into my bed, I can’t help but think how great it is to be humbled by gravity.


